After reading my dear love letter from my best friend and co owner of Home Grown Families Tiffany, you may have been wondering WHAT is going on?
That little one above is baby Rye, my newest family addition. Yesterday after a check up, the Dr had some concern about her vision. She has not smiled yet, crosses her eyes a lot, and seems to look everywhere and never really at you. We are being referred to a Pediatric ophthalmologist to have her evaluated. I originally took her in because of a spot behind her ear that was growing in size and had a weird bluish color. The Dr confirmed the spot was a hemangioma. She has 2, one behind the ear and one on the tip of her nose. This what the medical books say:
" Hemangiomas are tumors made-up of dilated blood vessels that usually appear shortly after birth, although they may be present at birth. Hemangiomas on the face can be disfiguring and may interfere with visual development or cause obstruction of the airway."
A lot to take in. My 26 weeker, Lil has a rather large one on her back which I had contributed to her prematurity but apparently its hereditary. At least for her it can be hidden, but not in Rye's case. I am just praying it will not grow, and will resolve by the age of 5. The books say 50% are resolved by age 5, and 90% by age 9.
I have felt so overwhelmed in the last few years with medical problems. From speech concerns with Carrot Top, 26 week delivery and fight for my precious Lil, to sadly losing my uterus with delivery of Rye- I thought I was done. I am naturally a worrier, I get it from my Mother(love you Mom!) so problems on top of problems makes me feel like so overwhelmed.
I know though that there is NO circumstance that the Lord can not overcome. I have lifted up my prayers to him, and I with that I must have Faith. We may not understand the path he has lead us down, but we must have faith that he will see us through.
We God and family, I will be all right and so will she.
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20 comments:
I will keep your family in my prayers, so sorry to hear that story.
Praying for you and your family!
Prayer said! Best of luck.
we are praying for you! God is in control.
I wish you and your lived ones all the best. I hope everything turns out the way you pray for.
Praying right now for you!! What an amazing friendship you have!!!
My twins both had a Hemangioma. Reagan's is completely gone and Riyan's is still visible at age 11. We called it the fruity pebble when she was little. It wasn't too large but was on her forehead (at the hairline now). It is more flat and no longer red now. It was much better by age 2. It took some time for me to adjust to it and the questions.
I am sending Prayers to Rye and big ole hugs to you!
my heart goes out to you and your little one. Prayers said.
I am so sorry you are going through this, praying for this precious blessing and for you
I'm praying for Rye (love her name!)
Definitely praying for your little one, you, and your family. I know the fight it takes to keep looking to God at times when things seem to be overwhelming but he does always come through for us. Keep your sights on him and your faith in HIM and you will come out of this with a new sense of love for HIM. God bless you all. KIM
Prayers going up!
I'm so sorry you're having so much trouble. Thought and prayers for you little peanut.
So scary, mama! You'll get through this and so will she. The odds of it resolving itself seem to be pretty good, so there is some sunlight in this whole thing.
I don't pray, but I will be sending you lots of positive & healing thoughts daily!
You and your family are in my prayers!
I have a 6 week old baby who has a hemangioma on her back by her spine. It worries me as we have yet to find out from the Dr. if it is the kind to resolve itself or not. She will be going to the Dr. tomorrow. I pray that she will not need it removed.
I will pray for your little one as it is nervewrecking to find out that anything is wrong with our beautiful children.
Hang in there. I hope that they resolve sooner than later for you!
Praying for you!
Will keep you in prayer.
praying for your sweet little lady to be healed, and for her mama to be at peace with whatever this new life brings.
My 1st grandchild had 2 hemangiomas that appeared shortly after her birth. On her forehead from the top of her eyebrow to the start of her hairline she had a large red one and on the back of her head she had the second large one that was raised. She just turned 6 about 3 weeks ago and both have now completely disappeared. She also was diagnosed with a "lazy eye" at about 3 yrs. old (we could not detect it at all). She began wearing eyeglasses (she loved picking out her purple frames). Then for the past 18 mos. she had to wear eyeglasses plus a patch for 5 hours each day on her good eye to strengthen the muscles in the weak eye. She started at 5 hrs/day, then was reduced to 3 hrs/day, then 1 hr/day. My daughter just had her eyes checked and my granddaughter doesn't need the patch or eyeglasses anymore. My daughter was also upset when these problems surfaced and everyone prayed for her little girl. I'm a big believer in the power of prayers. I prayed for Baby Rye & Lil that their hemangiomas disappear with time and Baby Rye's eye problem resolves too. Sending you a big hug. ()
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